Scheduled for October 29-30, 2023, at the George Mason University Campus in Arlington, VA, the Indo US Bridging RARE Summit 2023 aims to unite the global rare disease community and raise awareness about these conditions. While rare diseases are increasingly understood in the United States and Europe, there remains a lack of awareness in other parts of the world, including India. By addressing this gap, the summit aims to make a positive impact on the lives of 1.5 billion people in India and the global population of 8 billion.
Bringing together leaders representing diverse stakeholders in rare diseases, the summit serves as a platform for knowledge-sharing, exchanging experiences, and fostering collaborations to address the challenges faced by rare disease patients and their families. The event covers crucial themes such as cross-border patient engagement, care pathways encompassing screening, diagnosis, and treatment options, digitization of rare diseases including registries and emerging markets, diversity, equity, and inclusion in the globalization of orphan drugs, orphan drug clinical trials, and regulatory pathways.
IndoUSrare, the organizing body behind the summit, is committed to connecting rare disease patients worldwide and prioritizing education, research, and engagement to enhance their quality of life.
For sponsorship opportunities and event information, interested individuals can contact This email address is being protected from spambots. You need JavaScript enabled to view it. and visit https://www.indousrare.org/summit/. The Indo US Bridging RARE Summit 2023 is an important platform for collaboration and knowledge exchange to make a positive impact on the rare disease community worldwide.
The summit planning committee includes prominent individuals representing various organizations and institutions involved in rare disease research and advocacy. Some of the committee
members are:
- Amy Adams, Ph.D. - Institute for Biohealth Innovation, George Mason University
- Rich Bendis - BioHealth Innovation and BioHealth Capital Region Forum
- Anish Bhatnagar, MD - IndoUSrare and Soleno Therapeutics
- Madhulika Kabra, MD - All India Institute of Medical Sciences (AIIMS, Delhi)
- Reena Kartha, MS, Ph.D. - IndoUSrare and Center for Orphan Drug Research, UMN
- Juhi Naithani, MBA - IndoUSrare and bGlobal Consulting
- John Newby, JD - Virginia Bio
- Harsha Rajasimha, MS, Ph.D. - IndoUSrare and Jeeva Informatics Solutions
- Frank Sasinowski, MPH, JD - IndoUSrare and Hyman Phelps McNamara PC
- Bhaskar Sonowal, MBBS, MBA - IndoUSrare and HED Healthcare
- K Thangaraj, Ph.D. - Centre for DNA Fingerprinting and Diagnostics (CDFD)